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Living with Long COVID Symptoms

Are you a B.C. resident struggling with long COVID symptoms and looking for help?

The Post-COVID-19 Interdisciplinary Clinical Care Network offers research, education and care to support you in your recovery.

"Post COVID" is an umbrella term for any symptoms that remain after you are initially sick with COVID-19. This can include Post Acute Sequelae of COVID, or anything that can happen immediately after an acute COVID-19 infection. Examples include tissue damage/inflammation, autoimmune, metabolic, and psychological symptoms.


Post-COVID condition (commonly called “long COVID”) is typically defined as symptoms that persist for at least three (3) months from your initial COVID-19 infection that cannot be explained by an alternative diagnosis or other causes. Symptoms generally have an impact on everyday functioning.


 

Below, you will find two tabs:
  • Under the "Self-Care Info" tab, you will find information about  long-COVID  and links to resources to help you care for yourself. These materials have been prepared by health-care professionals.
  • The "Clinical Care" tab describes the services offered at the provincial virtual Post-COVID Recovery Clinic and outlines the referral process.

For a visual of what your recovery journey might look like, see our Patient Recovery Pathway infographic (PDF)

Self-care info


There’s still no single medical treatment or medications for long COVID. Most people follow a self-guided recovery path and use a combination of educational resources, tools, and symptom management strategies.
PC-ICCN has developed resources and tools to help you care for yourself. All materials have been prepared or reviewed by health-care professionals.

MyGuide Long COVID

PC-ICCN developed MyGuide Long COVID, an online tool that helps people living with symptoms of long COVID and their caregivers find best-practice self-management information. 

MyGuide Long COVID was developed in collaboration with patient partners, clinicians, and PHSA’s Provincial Digital Solutions team. It customizes symptom-specific care plans and resources based on information entered by the user. It provides personalized care recommendations and is available online at any time, from any device. 

MyGuide Long COVID is available in six languages: 
It also includes a dark mode for improved accessibility.  

Please note: MyGuide Long COVID doesn’t replace the advice of your family doctor or nurse practitioner. If you haven’t already been diagnosed, please visit your family doctor or nurse practitioner for formal diagnosis.
Visit MyGuide Long COVID


Clinical care

The Post-COVID-19 Interdisciplinary Clinical Care Network’s model of care for people living with long COVID symptoms takes an education-first approach. Patients have access to group education sessions and rehabilitation support. The Network also offers online resources to help your recovery and supports for primary care providers.

If you meet the clinical referral criteria, you can access care and support  through a province-wide virtual Post-COVID Recovery Clinic, managed by Providence Health Care. The clinic is an allied-health-led, rehabilitation focused clinic. It is staffed by an interdisciplinary group of allied health professionals, nurses and physicians and offers evidence-based care pathways.   

The clinic focuses on teaching self-management techniques. It also enables you to connect with peers through group education sessions. Once accepted to the program, you can access educational sessions and resources throughout your long COVID journey. You do not need to re-referred to the program if you have a symptom flare up in the future.

Your primary care provider (e.g. family doctor or nurse practitioner) can refer you to the Post-COVID Recovery Clinic by completing the referral form (PDF). To be referred, you must be experiencing symptoms that limit your daily activities and that have been affecting you for at least three (3) months following your presumed or confirmed COVID-19 illness. You do not need a positive COVID test.


Before referring you, your primary care provider must investigate your symptoms to rule out any other potential causes. The Clinic does not provide investigations and diagnostics.


Once your referral is received, an intake clinician will contact you and recommend a care pathway suited to your unique needs. 

The virtual Post-COVID Recovery Clinic (based at Providence Health Care) is available to patients across B.C. who meet clinical eligibility criteria. Once accepted into the Clinic, you will have access to online group education sessions, led by social workers, physiotherapists, occupational therapists and other team members. These sessions will give you techniques and strategies to support your recovery from long COVID. If you require it, clinic staff will arrange one-on-one appointments with allied health professionals or physicians. 


As a participant in our Post-COVID Recovery Clinic, you will be presented with opportunities to get involved in research. If you are interested, you can learn more on our PC-ICCN Research page.
Learn how we're taking care of your Personal Health Information with our Notice of Collection (PDF).


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SOURCE: Living with Long COVID Symptoms ( )
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