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Requesting Data

Our goal is to help you access the data you need while ensuring its security and appropriate use.

There are well-defined processes in place for requesting data from Performance Measurement and Reporting (PMR). By following our instructions closely, providing all supporting information required and responding promptly to any requests for further details, you can help ensure the fastest turnaround on your data request.

Response times

PMR works to process data requests efficiently, in collaboration with data requesters. We have specific targets for turnaround times on inquiries and data requests:

The complexity of the data requested and volume of requests will affect the timelines (e.g. aggregate data calculated from PMR data holdings vs. highly sensitive record-level data with external data linkages). Recent turnaround times are available.

You can learn more about what data are available from PMR. If you need help in determining your exact needs, PMR can help you align your ideas and questions with available data. To request assistance, submit a Data Access Request form and we'll follow up with you. 

Please note that if you are requesting PMR data for linkage, you will typically be required to send your own data to be linked by PMR. We review data linkage requests on a case-by-case basis, considering the type of data being requested, the linkage plan and the data management plan.

1Submitting your data request

Data requests are submitted online using PMR's Data Access Request form. This form requires you to:

  • describe your data request
  • provide a date for when you need your data
  • provide contact information so we can follow up with you 

You’ll receive an email with a copy of your data request and a unique project number. You’ll need the project number for further PMR correspondence and project tracking.

Typically, we’ll have some follow-up questions for you before your request can be finalized and ready for review.

For transparency purposes, PMR routinely provides summaries of all the data requests we receive (including research requests) to various leaders across PHSA’s agencies. Reports list project details such as the title, requester name and data request status.

Research requests 

If you have a research request for which you're certain that PMR has the data you're seeking, you can bypass the Data Access Request form submission and go straight to completeing the Research Data Access Request form.

If you're not certain PMR has the data you're seeking, complete the Data Access Request form and someone will get back to you. 

The Research Data Access Request form asks for information such as:
  • details about your data requirements and your plans for data use, storage, management and access 
  • details about who will have direct access to the data 
  • a copy of your project protocol
  • a copy of your Research Ethics Board certificate and application. If you’re in the process of requesting a certificate, please indicate this on the form.  

2Review and approval process

PMR uses a risk-based approach known as proportionate governance when reviewing all data access requests. A standardized Data Access Risk Assessment Framework, which supports PMR to uphold its responsibilities regarding data in its custody. The type of data requested and the environment in which the data will be stored are key considerations. Any specific risks identified will each require a plan for reducing the risk (mitigation strategy). Depending on the type of risk, the mitigation strategies required may be quite straightforward (e.g. the project requires sign off from the Principal Investigator) or more complex (e.g. the project needs a full Privacy Impact Assessment (PIA)).

If our risk assessment determines that your project requires a PIA, PMR will notify you to work directly with the PHSA Information Access & Privacy (IAP) Office to get your PIA completed and approved by them.

Once you’ve fulfilled all risk mitigation requirements identified through the review process, PMR will approve your data request and generate a Data Access Agreement for you to sign.

‎In addition to any specific requirements, the Data Access Agreement contains a number of standard terms and conditions that you must meet. They include:

  • Requesters shall safeguard data entrusted to them and not misuse or wrongfully disclose such data.
  • Data are to be used only for the objectives approved by PMR in the Data Access Agreement.
  • Data will be retained for a limited time, normally set at an initial three years, with the possibility of extension with approval by PMR and other applicable parties.
  • Any requested changes to objectives(s), personnel or time frames will be submitted to PMR for review and approval. 
  • If Research Ethics Board approval is required, the certificate must remain current throughout this data retention period.
  • Data are to be accessed only by named staff as listed on the Data Access Agreement.
  • All named staff, including the PI, must read, agree and sign a Confidentiality Undertaking form.
  • If there is intent to publish, PMR will be informed of all pre-publication materials prior to submission by completing the Intent to Publish form.
  • The disclosure of information will comply with all relevant local policies, including PMR and PHSA policies.

If you're not satisfied with the results of the risk assessment, you can apply for an appeal. The request for appeal – along with any additional supporting information from the data requester – is sent to the data steward for a final decision. 

 

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Receiving PMR data

Once you’ve returned the signed Data Access Agreement, PMR can begin fulfilling your request. 

Data will be transmitted to you according to the terms outlined in the Data Access Agreement. 

4Using PMR data

PMR remains a resource to you even after we’ve fulfilled your data request. Data interpretation services or consultations are available on request to help you make the best use of your data. Please contact us at any time.

You’ll also have ongoing requirements regarding the use and disclosure of data and results. you wish to make any change to the plan or conduct of your study after it has been approved, you’ll need to submit an amendment to PMR for assessment. Examples of amendments include request for additional data fields or years, or expansion of your study population.requirements regarding the use and disclosure of data and resultjjjjjjj

 If you wish to make any change to the plan or conduct of your study after it has been approved, you’ll need to submit an amendment to PMR for assessment. Amendments to studies should be changes within the scope of the original study, not new studies that are simply related to the original study. Examples of amendments include request for additional data fields or years, or expansion of your study population. 

If you wish to make any change to the plan or conduct of your study after it has been approved, you’ll need to submit an amendment to PMR for assessment. Amendments to studies should be changes within the scope of the original study, not new studies that are simply related to the original study. Examples of amendments include request for additional data fields or years, or expansion of your study population. 


Submit amendments via the Amendment Request form. You’ll need to provide: 

  • your unique project number
  • a description of the amendment
  • a detailed rationale for the request

Amendments will be re-reviewed using the Data Access Risk Assessment Framework. Depending on the request, a new Data Access Agreement may be required.


If you're adding or removing project members, you’ll need to advise PMR by submitting a Changes to Project Members Request form. 

If there is intent to publish your results, you’ll need to inform PMR of all proposed publication materials prior to submission (generally five business days, but this varies depending on the type of output; more information can be found on the Intent to Publish form). You can do this by completing and submitting an Intent to Publish form. 

 

5Project closure

PMR will send you an email notification 60 days before your project closure date.  If you need to keep the data beyond this date, you can request an extension by completing and submitting a Data Retention Extension Request. You’ll need to provide:

  • a progress report
  • rationale for extending the data retention period
  • ethics renewal for the extended period, if applicable

If you’re ready to close your project, you’ll need to complete and submit the Project Closure and Confirmation of Data Destruction form. The form describes the process for destroying or returning all data to PMR. 

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