We’re pleased to announce Holly Longstaff, a PhD-prepared ethicist and research consultant, is PHSA’s new Research Privacy Advisor.
In fall 2016, we announced that a new Research Privacy Advisor position had been created to support PHSA’s research community (see story
). This new resource was established to help clarify privacy considerations for research, and help ensure ethical, regulatory and institutional requirements are met, as well as the requirements of funders. The privacy advisor for research services will work directly with PHSA researchers and research staff to identify privacy considerations, and recommend practical ways to reduce and manage risks.
We’re pleased to announce that Holly Longstaff has joined PHSA in this new role. Holly Longstaff is a PhD-prepared ethicist with a broad background in privacy and the ethics of health research. Holly is the ethicist for the BC Cancer Agency Research Ethics Board (REB) and is a member of Schulman Institutional Research Board’s Canadian panel. She has also served as an ethicist for the University of British Columbia’s Clinical REB and Behavioral REB and was the Interim Associate Director for the Office of Research Ethics at Simon Fraser University (SFU) for two years. Through her role as an ethicist, Holly has extensive experience in reviewing proposed research studies for privacy and confidentiality requirements, and in helping researchers navigate ethics and privacy requirements.
Holly has also developed policy and related guidance documents for Health Canada and the Public Health Agency of Canada, created ethics, privacy and confidentiality educational materials for the CIHR Ethics Office, and provided consulting services for a variety of organizations including the Canadian Clinical Trials Coordinating Centre and the BC Ethics Harmonization Initiative (BCEHI). She is currently collaborating on a CIHR grant held by principal investigator Dr. McGrail at UBC which focuses on consulting with the public about good governance models for data sharing and access to research resources.
Holly is passionate about supporting the research community in advancing ethically and privacy sound research, and committed to recommending practical ways to reduce and manage privacy risks in research.
We encourage you to reach out to Holly early in the research planning process to identify privacy considerations, and advance your project in a way that reduces and manages risks to participants.
Holly Longstaff, PhD
Research Privacy Advisor
PHSA Research & Academic Development Services