The mandate of PRAG is to provide a forum for Health Authority Privacy and Research leads to coordinate on common provincial research projects or projects that may become provincial in scope to better support and ensure projects meet our common requirements under the Freedom of Information and Protection of Privacy Act (FIPPA). This group is Chaired by Janine Johnston, the Privacy Advisor, Research at Vancouver Coastal Health and Shannon May, Research Privacy Specialist with the Vancouver Island Health Authority.
If you would like PRAG to assist you with your research study, please contact PHSA's Research Privacy Advisor.
The difficulty around navigating provincial privacy requirements for multi-site data driven studies across Canada is well documented. The Pan Canadian Research Privacy Network was recently formed to support these efforts. This is the first network of its kind in Canada. Members of the Network have expert knowledge in the privacy landscape of their province as it relates to REB approved research and can speak to the privacy requirements within their region. The intention of the Network is not to modify provincial practices or centralize reviews, but instead to foster more efficient privacy reviews by becoming a key Canadian resource for multi-site studies. Monthly Network meetings are chaired by the Research Privacy Advisor for PHSA.
We are pleased to announce that the VPR Committee of HealthCareCAN endorses the Research Privacy Network and supports its efforts to facilitate efficient privacy reviews for Canadian multi-site research projects.
If you are planning to launch a multi-site data driven study across Canada, please contact PHSA's Research Privacy Advisor for support.