Resources are available to help clarify privacy considerations for research, and help ensure ethical, regulatory and institutional requirements are met, as well as the requirements of funders.
Some of you may have noticed that we changed the way privacy reviews are done for research studies at PHSA in April 2017. Research studies are no longer required to complete a privacy review intake form or undergo a Privacy Impact Assessment (or PIA) at the PHSA Information Access and Privacy Office. Instead, the Research Privacy Advisor will now conduct a privacy review, when necessary, at the same time as the Research Ethics Board (REB) review and the privacy review will be included with your other ethics documents on RISe (the online ethics application submission system). This new process is intended to streamline the privacy review process and reduce bureaucracy while also ensuring that research conducted at PHSA is carefully reviewed for privacy considerations.
In some cases, your REB will notify the Research Privacy Advisor to determine if a privacy review is required. However, you are also welcome to send your study to the Research Privacy Advisor before it is submitted to the REB if you think you might need a privacy review or if you need some privacy-related advice.
Not all research studies require a privacy review. Only studies that use or link personal information or have significant privacy concerns are reviewed by the Research Privacy Advisor. Researchers are encouraged to review our checklist
of activities that lead to significant privacy concerns for research studies.
If you have questions about this new process, please contact the Research Privacy Advisor
or visit our FAQ’s and other privacy tips on the sidebar menu of this page.